Wednesday, February 22, 2012

"She and Adam" Part I


Okay guys, I’m trying something a little different, here. I love to write fiction, but I have a horrid habit of starting stories that do not finish. I figure I can use the very few readers of this blog to motivate me to complete my work. I’ll post whatever I get done here. Then I’ll be motivated to post the next piece because you will ALL WANT to read the next section…. Right? ….. Well , it’s worth a shot.  

THESE ARE VERY ROUGH DRAFTS. I haven’t edited these pages out loud, and probably wouldn’t hand them into a creative writing workshop. Also the writing may plain suck; I haven’t been graded on my fiction in a long time! In any case, read it criticize or don’t. This A Story I’m work on called "She and Adam." Again it  is just the first seven pages. I have to keep writing



She didn’t know what she was doing. How do you write about someone like him? How do you tell the world about the injustices he suffered, and tell them how loved he was? How do you describe how horrific and fantastic it was to be a part of his life? Her undergrad degree in creative writing, that the dean of the University of Massachusetts had handed her  six and a half years earlier, hadn’t prepared her for the emotional ride an author takes when writing words that tear at their heart. She had never wanted to write about what happen. She never wanted to think about it again, and she wouldn’t have either, but her dad had asked her to try to tell Adam’s story, and her dad had never asked her for anything. So she opened up a word document with her brother’s name in the header, and did what her favorite professor always told her to do, she  started at the beginning.

Adam Joseph Miller was born on July 12, 1987, exactly three months after I turned six. The sister between us, Bailey, was three and much less happy than I was about the arrival of our new sibling. She had always been very attached to mom, and often became inconsolable after ten minutes of her unexplained absence. It had been ten hours.   I remember Aunt Diane attempting to calm with sleep in her eyes, “Go to bed now, and next time you see your mama, she’ll be holding the baby!” “You’ll be a big sister now, too!” I said, trying to help, nothing worked.  It’s surprising to me now that Bailey is the most well adjusted person in our family. When Adam’s life began to unravel, we all worried the most about her. She had a ringside seat, and a habit of blaming herself for things she couldn’t control. 

After making sure Bailey was asleep,  My aunt, who always went out of her way to make me feel like I was her favorite, told me I could sleep in her bed, in case news of the baby’s birth came in the middle of night.  It did. True to character, Adam entered the world at 2:35 AM.  Aunt Diane took us to the hospital right after breakfast. I was so excited to meet him that I demanded it. I ran straight to my dad because I knew Bailey would make a bee-line for mom and I didn’t want to get caught the cross-fire. “The biggest sister!” he half-whispered enthusiastically as he picked me up, “Mom had a little boy; you have a brother.”  He laid me next to my mom who kissed me softly on the forehead three times, like always, and I saw him. My brother!  His arms already had rings of fat around them, and his eyes were wide open. Bailey was snuggled into mom’s other shoulder, she asked to hold him first. Apparently, all the “I don’t want a new baby”, feelings from the night before had disappeared.  She sang “You are my Sunshine”, to him and then it was my turn.  I kissed `and kissed and kissed his cheeks!  Both my sister and I were both as in love with him as we’d ever been with anybody or anything.  For a year, almost every interaction I had with Bailey was fighting over him. We fought over who sat closest to him at the dinner table, which one of us got to hold him while mom vacuumed the house; we even wanted to help change his diapers. If you had told me then that, eighteen years later, Bailey would be helplessly begging me to take Adam off her hands; I would have thought you were insane. In fact, if you had told me that story a year before in happened, I would have thought you were insane. 

Just writing about his birth took her three hours. She kept pausing to wipe away tears.  She was dreading the moment when she would have to stop writing about the little brother she loved and start writing about the stranger he’d become. It seemed impossible.  She shut her laptop and walked the kitchen. She didn’t really need coffee; she was probably too awake. Her husband and daughter were asleep though, and she needed a break, something to do that required no thought—so she filled the coffee pot with water and emptied it into the machine. She poured coffee granules into the filter and pushed the red button. She didn’t however stop thinking. She was suddenly livid. The brother she knew had left her a long time ago, and she wondered if his ghost deserved this. Dad refused to admit it, but Adam had shamed the family—wrecked their name. He had devastated lives, he had ended one. He broke her heart, Bailey’s heart. Marcus wasn’t a good guy, but he was some mother’s son.  No mother deserves the pain of burying their baby. No matter how much he hurt her sister, Marcus didn’t deserve to die. She smacked the counter in anger, and then she sat down.   For the first time all night she was not consumed with Adam, she was thinking about Maria. Her four year old daughter had never met Adam and of course, she wouldn’t. This idea made quietly sob for a while, but then, oddly, it motivated her.   Maria would undoubtedly read about what happened one day, and if she only read the words of writers who didn’t know her uncle, it would be very easy for her to believe that she was related to a monster. That couldn’t happen. She tippy-toed down the hallway into her baby’s room and kissed her on the forehead three times.  “For you, little girl, for you and for dad.” She accidently whispered. She was sad, frightened and she felt sick, but she didn’t need a third reason to tell Adam’s story.

I hate it, but over the years Adam and Bailey grew closer to one another than either one of them was to me.  This was partly because of personality.  They were both warmer than I am. I was driven; I didn’t have time to be warm. They confided in each other because they knew I’d scoff and tell them to get over it. I constantly encouraged them to push on, the way I had. When I was eleven, Bailey was badly bullied by another girl. She kicked Bailey and called her hideous while a couple of other kids watched. I remember that word, because after school, Bailey asked me, “Do you think I’m hideous?” I said, “Mom and dad hate when people fish for compliments. Tomorrow nobody will call you anything.”   Adam told her she was beautiful. He told her that Melanie was jealous of her pretty red hair. I was telling the truth, Mom and Dad had always preached that being self-deprecating was self-serving.  He told the more important truth. Bailey was beautiful. At five and eight, Adam and Bailey already knew something it took me a marriage and a pregnancy to learn. Most of the time people fish for compliments because they need them, and sometimes they deserve them. I’ll never understand why some people are just born with huge amounts of compassion, and why some of us have to work so hard at it. I’m not a cold person.  I guess, I wasn’t born with the gift of knowing what to say, so I try not to say anything.
She highlighted and deleted the sentence, “I write my emotions down, and throw them away.”  Whoever was publishing this wouldn’t care about the way her mind worked; she didn’t kill anybody.



My brother and sister became even closer when Mom was diagnosed with stage -three Breast Cancer. I at  the tale-end of my freshmen year of college, and decided after spending four days at home with my sick mother, that I needed to take summer classes. I couldn’t face what might happen to our family, so Adam and Bailey faced it together. It was only in the wake of Marcus’s murder that my dad told me how much how hard my siblings had it. I inherited my refusal to handle heartache from my dad. He shut down. He restored  cars for hours after working the overtime he’d requested, and then he came inside, sat on the couch, watched re-runs of ‘60’s sitcoms, and drank a little beer.  Adam drove Mom to her chemo treatments and Bailey held her hair back while she vomited the medicine that was supposed to be healing her.   Our Mom fought bravely for two years, and then one night my dad called me and told me to drive home. When I got there Bailey was feeding her ice-chips and Adam was doing his best to make her laugh.

They saw her through cancer and at the end, when we all knew mom couldn’t hang on anymore, it was Adam who held her hand, and gave her our permission to leave us. Bailey hugged him and kissed her; she thanked our mother. I leaned down let my mom kiss my forehead three times and made an inadequate excuse to leave the room.  Mom died at one twenty-three in the morning on August 30, 2002. Adam was barely fifteen. He was never okay again. I thought for a long time, that our entire family would never be okay again. Contrary to what most people tell you though, a family can be okay without being whole.

Where did she go next? Bailey meeting Marcus? To the day she realized her brother was capable of evil? Did she want Maria to hear that story? Too many questions swirled around her; she couldn’t write anymore tonight.  She climbed into bed and pulled Nick’s arm over her.  Normally, she liked to sleep with plenty of space between her and her husband, but tonight she needed to feel him. His presence had calmed her down and warmed her up since they met at twenty.  She felt so fortunate when he pulled her in a little tighter. He knew she needed him.  At three o’clock that morning she fell asleep not wondering why mental illness happened to people as wonderful as Adam.  Instead she was wondering why some women meet men like Nick so young, and others , ones as wonderful as her little sister, have to meet men like Marcus.
When she woke up the next morning she had a text message from Chrissie asking her what day would be best to meet for lunch. Chrissie was where she’d go next.

One of my best friends from college lost her mother in a car accident when she was thirteen. She was in the back seat of a mini-van when a semi-truck’s force threw her mom through the windshield, killing her almost instantly. Firemen had to pull Chrissie from the wreckage. She has two jagged, long, white scars on her tan, shapely legs that serve permanent reminders of the day her mom passed away. Her father offered to pay for a treatment that would make them less noticeable, but Chrissie told him to save his money. She said one night, after three daiquiris that the scars were the last things she and her mom got together, and that she was afraid that if they faded, her memory might fade a bit along with them. Of course, after three drinks, it didn’t come out quite like that.

Chrissie graduated as valedictorian of UMass nursing school and went on to become a nurse practitioner. She moved to Manhattan and is engaged to a man who could be an underwear model but chooses to work as a civil engineer instead. She is by far my most successful friend, and one of my happiest, too.

Chrissie’s life was much more traumatic my little brother’s. Don’t get me wrong, sometimes I knew it got to her. The day she graduated, I found her crying in the fetal position in the backseat of her car. The seemingly endless string of boys she took home until she met her fiancĂ© had to be filling of some kind of void but Chrissie moved on. After all that, she persevered.  

Adam had time to prepare for mom’s death. We all had the luxury for which Chrissie spent years longing, a chance to say goodbye.  For years, I was so angry Adam—and sometimes I still am. It didn’t make sense that our mother’s losing her battle with cancer could be the beginning of his end while Chrissie did so well. She had better reason to be mad at the world.   

Now, I understand something that makes me angry with myself. When Adam lost mom, he lost the only person who recognized that he felt differently than most… the only person who saw that he was ill. He hid it from the rest of flawlessly and he wanted to be discovered.

She took out her phone told Chrissie Tuesday worked, and added an uncharacteristic “I’m so excited to see you!! XXOO” to her text.  She was always glad to get together with Chrissie, but today she felt like Chrissie just might need to know it.  Maybe, she thought, there is a tiny piece of every kid who had to grow up to fast—happy or not, that wants to be discovered.

My family went to several doctors in the wake of what my father will probably always refer to as “that day”; we wanted to understand Adam. The problem was, Adam didn’t fit into any boxes. He was “overly cautious” but not quite paranoid. He had signs of mania, but they would not call him manic.  He lied a lot but they weren’t sure if it was pathological or deliberate. He had psychotic episodes—“moments when he lost with touch with reality” but seemed “generally aware of his surroundings of his actions.” According to the shrinks, Adam had a personality disorder, NDS: Not Otherwise Diagnosed. How the hell were we supposed to handle to understand that? It’s not shocking that Adam couldn’t understand himself.


Monday, January 23, 2012

On Birthdays..... Sort of


One of my favorite people, my sister Maggie, turns 24 this week.  During her life, Maggie has made living look simple. She has friends who love her, a valuable degree, a boyfriend who looks at her like he won the lottery, and she got a job she that she likes right out of college. Make no mistake, my sister accomplished all of this by working harder than most people on the planet—I wish I was born with her innate drive, and had developed the sense of pride she has in everything she does. She is truly admirable. Her upcoming change of age has me thinking about what birthdays mean.

As most of my friends know, back in November I was full of dread at the thought of turning 23, because I was feeling so behind. Not behind Maggie, she has never allowed me to use that as an excuse for a pity party, but behind what I thought I would be. I had not finished school, nobody was in love, and I was still clueless as to what I wanted to do with my life. Nine and a half months later, nothing has changed significantly. I still have no degree, no boyfriend and no real plan. Cheery, huh?
I have learned however that I am not alone in my embarrassment. A substantial number of my twenty-something friends feel like their goals are slipping away, too. I think this is because not many people have the gift my sister has.  She has always recognized the amount of work it takes to do well, and considered it a positive thing. Dreaming is unexplainably important, but it’s worthless if you don’t put in the day to day effort to melt them into reality. Do not misunderstand me, I’m trying to put in that work and I KNOW my friends are also. The trouble is we find no or little joy in the journey. Most of us see the ending and desire to skip to it. We find the beginning and middle to be just a necessary evil. People who make life look simple, look for the fun in getting there (“there”, of course being wherever they want to be). We must embrace each birthday. Aging joyfully is the only way will get whatever ever year it’ll be when we’ve finally done it. We must not look at each year and dwell on whatever we didn’t do, but focus on what we must do next. The bottom line is, life is so challenging that the only way one will get through it smiling is to love a challenge.  The great part is, a person can go to bed one day hating whatever work lay ahead of him and wake-up in the morning determined to find the pleasure in it.  We all make that choice. As long as most days we decide to enjoy those obstacles, we will be okay.   Every birthday will be happier than the last.
I hope.

Wednesday, December 28, 2011

On a very important topic



This is a hard blog to write, as so much in my own life seems to be changing. So much of my own life seems to be turned on its head. I am hopeful though, hopeful that good things are coming and that fresh starts are just what the doctor ordered.


Because of struggles in the past, I made a promise to myself that this blog would not contain facts about my day to day life, and I don’t want to frighten any readers. I AM okay. This blog (unlike my Facebook and Twitter accounts) is completely public. For this reason, I feel almost obligated to post this message here.  I want a lot of people to read it.


Somebody out there cares about you. Your welling-being affects at least one, if not many, many others. Let that be enough. Let that be enough to motivate you to make it. Let it be enough reason to get help. Let it be enough to force you to be truthful about your pain—to be truthful about life. Let be enough to make you look for the beauty in yourself. People, who you don’t even know, might love you. People, who have never before shown interest in your happiness, might stay awake at night thinking about you. You just don’t know who your sadness causes to be sad; there is no way to know. Do everything you can to be healthy and do everything you can to joyfully thrive. Those to whom you matter deserve it. Learn to love yourself, not to do so is ultimately selfish. If you have trouble understanding how to do that, ask someone to help. Take all the help you can get. There’s no shame in needing hands to hold. Somebody out there cares about you. Let that be enough

Saturday, December 10, 2011

On Perks


Contrary to what many people think, there are perks that come with having a disability. There perks about which we joke, like getting to the front of amusement park lines, discounted train tickets, and better parking spots, and then there are the perks that matter.  Actually, it’s one huge benefit that I have never heard articulated very well until a couple weeks ago. My friend Cathy said to me, “C.P. weeds out assholes.” It  does.                                                                

I am not saying being disabled does not make it more difficult to find and make friends. That is untrue.  Bullies see people with any visible uniqueness as an easy target and it doesn't get much more visible than Cerebral Palsy. The hardest thing for me to handle as a kid was  being ignored or deemed too difficult to deal with.   The feeling of being judged very harshly for something over which you have no control is one that I’m unable to describe well. It is painful, and I guess the only other thing I can think to say is that it is exhausting. I am sure the majority of those reading this have experienced it for some reason, and for that I’m sorry. What being disabled since birth has helped me realize is that, unfortunately, a lot of people will judge me harshly for my disability, but the ones who choose not to are worth their weight in gold and chocolate.  Disabled people can trust that the friends they make are genuine. The stigma that society places on us makes it almost impossible for people to fake wanting to be around people with handicaps.  The weak are embarrassed , so we are left with the mighty. Furthermore,  personally, the  simple fact that my friends have to fold, unfold, load and reload a walker, just to have me with them says to me that they probably want me there and I’m so grateful.
I have the strongest, sweetest, truest friends anyone could ask for and the fact they can accept me means that they can accept most people. I hope more than anything that they are proud.

When Cathy made the comment quoted at the top of this post, she was speaking about romantic situations.  Pigs typically do not have the courage to date disabled women, let alone sustain relationships with them. Some guys do go in thinking that they can handle it and end up failing but that’s pretty much as bad as it gets. When one walks around unable to conceal their differences, they can only attract people who are accepting of difference, and that’s a blessing in every single type of relationship. I have seen a couple of my disabled friends fall in love with people who think the way my friends do, and it gives me hope. It may be risky for people to fall in love with those of us who are physically challenged but I think that when they do, it is probably forever. I believe that makes us ridiculously fortunate.
Do not get me wrong, the shorter lines, cheaper seats and closer parking are fun but the awesome people are definitely my favorite!

Friday, December 2, 2011

On Bad Excuses

I want to open this post by saying that I honestly admire most people with any sort of religious faith. I know that it is personal and extremely precious to those who have it and I really do believe that it mainly brings goodness to the world. Pieces of this post may make Christian readers feel like I am picking on their beliefs, specifically.  If that occurs, I am sincerely sorry. All faiths have positive and negative aspects and good and bad happenings in their history.  I reside in the Middle of the USA and the fact is, I am surrounded by Christians; almost all of the religious behavior I have seen (loving and unloving) has been theirs and not that of Jewish, Muslim, or Buddhist people.  When you read this, please know that I understand that harshness and close-mindedness is not unique to any religion, race, political party, sexual orientation, or other group.
After watching Michael Pearl be interviewed by Anderson Cooper, I just have to say:  I’m so sick of people using their religion as justification for bullying and abusing. Michael Pearl beats his kids, and encourages  his congregation to follow suit,by convincing them that God says it is okay when he says he wants children to honor their parents. Misguided individuals stand on college campuses calling people fags and hell-goers in the name of God. Sarah Palin tells her followers that women in the richest country in the world should have to pay to get rape-kits because the book that she reads doesn’t condone the Plan-b Pill.  The families of Veterans have to deal with protestors screaming at funerals because those shouting people say God would happy  that they are burying loved ones. These are just four examples of inexcusable behavior that people use faith to excuse.   Let’s call a spade a spade, this is gross!  
I am mostly agnostic but I have taken a class that required me to read and analyze a lot of the Bible. It is a text that encourages love, morality and forgiveness. Michael Pearl, Sarah Palin, funereal protestors and anyone who says different are both misreading and defiling it.  God, in my opinion, wants of us to take of each other.  Misinterpretation of scripture is not what bothers me most, however.
The year is 2011, we know, at least in part, the capabilities of the human mind to learn and evolve. You cannot use a book, no matter how holy you think it is, to explain away cruelty. Even if you believe the Bible says plainly that it is acceptable to hit children (which it doesn’t), you know better. Psychologists discovered a long time ago how damaging physical abuse is to a person’s mental health. Common decadency tells us that we all have right to  mourn sons, daughters, lovers and friends in peace and that it is more than unkind to call people derogatory names.  Common sense should tell us that a victim of rape shouldn’t be held to the same level responsibility as two consenting adults who decided to have unprotected sex.  As a society, we need to stop accepting blind faith in a higher-power as a defense. People are choosing to be mean.
All of us regardless of what color our skin is, who we find attractive, what beliefs we have, need to tell the world what we tell our kids: IT’S WRONG TO BE MEAN, especially on purpose. Period.  We can no longer afford to say: It's wrong to mean unless you really, really believe what you are saying. That line of logic not only makes no sense, but it is also one of reasons teens are killing themeselves, rapes are going unreported, parents are beating their children until they stop breathing. There is absolutely no excuse for any of that.

Wednesday, November 30, 2011

On Blogging.... at Least in the Beginning

I was told today, “Because you’re a writer…. You should blog.”  It makes sense. Dancers are called dancers, because others watch them dance. A man’s not a football-player if nobody has ever seen him throw a pig-skin, and one is only considered an astronaut when NASA knows they have been to space.   The easiest way to share information in 2011 is via the internet, and therefore if I want to be called a writer, I should use it to write.

 In spite of all of this, I responded to my friend’s comment by saying that I had no idea what I would say in my blog. I am not particularly interesting. I’m a typical, atypical, disabled twenty-three year-old woman. I have probably succeeded and failed as much as any other, typical, atypical disabled twenty-three year old who might read this.   I do not say this to be self-deprecating. Sure, we’re all special; ask any mother or hard-working kindergarten teacher in America. Truth be told however, if we were all particularly interesting , the names, Austin, Shakespeare, Marquez, Twain, and Joyce would be neither famous nor infamous.  These writers are both, because they thought things the rest of the world did not, and they articulated those thoughts more eloquently than the rest of the world could.  I know myself well enough to know, I do not think that deeply or speak that pretty—most people don’t.   So, why did I decide to blog? Because as this whole babbling post has hopefully established, very few of us have unique experiences, thoughts, joys or pains. This means that very few of us will be famous or infamous, but it also means that we can learn from one another. I don’t know into what this blog will evolve. I am just going to give it a shot, I’m going to blog every once in awhile and hope that somebody can relate to my words. Another incredible accomplishment of the written word is that it has given voice to the voiceless. If any friend or reader out there wants a specific topic discussed, talk to me.  I’ll do my best to lend you my voice. If in that process somebody calls me a writer, well, that’s cool, too.